I was diagnosed with CLL - Chronic Lymphocytic Leukemia on Jun 4, 2014. My life changed the minute I heard the words that nobody ever wants or thinks they will hear.
I was on watch and wait for 15 months as they don’t treat until the disease and symptoms progress. My disease is aggressive and progressed faster than I had hoped. I went through six months of unsuccessful chemotherapy and after going for a second opinion I found out I had an abnormal chromosome called 17p deletion which makes treatment even more difficult.
I was part of a clinical trial from Aug 2016 until I started to resist my medication in 2019. I was about to start a new trial back in April of 2020 when Covid made it’s way into our lives. I was able to go on a medication that helped me manage until earlier this year when I once again started to resist it. I am thankful everyday that research continues as I still had options and started a new daily medication as well as monthly infusions. This treatment has been going very well so we are all very confident that I will be hearing the words "you are in remission" in the very near future as well as able to stop all daily medications.
When I was first diagnosed I was told that if I had it had been five years prior my outcome would not have faired well in my favour. There was a time that I was afraid I would not see my boys get married. A couple of weeks ago I was able to dance with my first born at his wedding and it is a moment I will remember forever. I no longer think "I hope I will..." I am now looking forward to making many more memories and being here for many more milestones with my family and friends.
Over the last few years I have become very aware how important it is to continue fundraising so that research can continue. I want to be able to give current and new patients hope, therefore, I won’t stop until a cure is found.
Team Tammi is looking forward to our 7th Light the Night. We are have now surpassed $203,000 which I am extremely proud of. The LLSC needs us and I hope you consider donating, joining or sharing to help make this year our best one yet!
The strength, determination and positivity I have seen from other patients, their friends and family as their support system is truly inspirational.
My motivation is fuelled by the idea that sharing my story will help others diagnosed know they are not alone. I have learned that surrounding yourself with people going through similar journeys is very helpful and I am honoured to be part of the blood cancer community.
Raising awareness and funds are my mission and I look forward to when all patients and families have a bright future!
The future is so full of hope! Blood cancer no longer has to be a scary diagnosis!