In early 2018, I was diagnosed with a rare chronic blood cancer called Myeloproliferative Neoplasm - Essential Thrombocythemia. The discovery was random and shocking, as I had simply gone for a regular checkup and bloodwork with a new family physician. After genetic testing and a bone marrow biopsy, the diagnosis was confirmed. I spent the next 2 yrs or so on the "wait and watch" protocol. Fast-forward to the Fall of 2020 and my symptom burden had progressed to the point the protocol was no longer working. I initiated immunotherapy / biologic chemotherapy in late November and since that time I have been receiving injections 3x weekly at home. My fatigue has lessened, my bone pains have dwindled and my blood counts are almost all back within normal range! The upsetting part however is that I will likely never be able to come off this medication, for fear of a rebound effect of symptom burden and blood counts.
Through it all however, I remain grateful. I have learned a sense of calm and presence in myself I never thought possible. I am surrounded by a fantastic support system of family & friends and I know I am loved. I also know, deep in my heart, I will beat this thing!
Light The Night brings communities across Canada together for one magical evening to share stories, remember loved ones lost and pay tribute to our heroes, bringing light, love and hope to dispel the darkness of blood cancers!
We are taking the first step and showing our support.
In 2020, my team was able to fundraise $3725!! Pretty impressive for a first time out I'd say! So we've raised the bar this year! Please join our team today and/or donate as you are able! :)